Waiting is something that I would not list in the abilities column of my life resume. Life always gives you opportunities to wait, both good and bad. It could be waiting for a trip or a baby to arrive (9 months is WAY to long in my opinion). It could be waiting for test results or a phone call you fear to receive. Waiting brings out our imaginations as we explore our hopes, dreams and fears. Waiting is not productive, I have decided this......
Today we had the assessment for our second son. It was called the ADOS. Part 1 was a 1.5 hour play based observation type thing. 1:1. I enjoyed watching the Doctor as I knew exactly what she was looking for and it was great to see how she approached each activity. It was very hard for me to observe because I like to talk... a lot. I had a few stern looks as I stifled a laugh (or 2) in response to my sons responses. His answers and actions were pretty damn good and were tailored exactly to his current need.... to get the doctor to stop asking him questions. I loved watching my boy manipulate the testing to achieve what he needed/wanted. I was intrigued at how creative he is, although I already knew he was brilliant! =:0) He did amazing and proved the school "experts" completely wrong as they had him pegged as "untestable".
Next came the parent version which was a 3.25 hour interview with the superhero and myself. I never thought I could possibly examine my boys life in such detail but we pulled apart every behaviour from birth. It was exhausting!! My superhero looked like he was going to fall asleep! He would occasionally contribute his opinions and observations, which were quite insightful. He later informed me that this was his method of staying awake. As mentioned before, I talk, a lot.... by the end even my throat was scratchy from talking so much.....
I went into this knowing what the outcome was going to be. In my mind I had decided that the wait until April 27, when we have the results conference, was no big deal as I knew what was going to happen..... Well, it does not happen often, but I may have been wrong... that is a big MAY.... I left not knowing what the hell the outcome is going to be. They are certainly looking at some sort of ASD diagnosis but he may just be "Quirky". They now want to query ADHD, however I have left quite an impression of my thoughts for this particular diagnosis in his circumstances. I let them know that a label which is not accurate will not be placed on my boys head just as a scapegoat. Who knows what "diagnosis" if any he will get from this but once we get the results, there it is..... We also had a call from the neurology nurse, my sons platelet levels are dropping again for no apparent reason. So in a week he gets yet another needle to check and see if this is a consistent problem. If it is, the knee jerk reaction of saying it was his meds, may be debunked... surprise, surprise.....
So now I have to wait and wonder... my imagination, which is a bit of a curse, will create many scenarios along with all the outcomes possible.... Have I mentioned I hate waiting??
No comments:
Post a Comment